Group photograph with the representative of the Coordinating Minister for Health And Social Welfare, Prof. Mohammad Ali Pate, Dr. Kamil Shoretire, Permanent Secretary Designate, and Director, Department of Health Planning, Research and Statistics
17th April 2026
ABUJA-Haemophilia is an rare inherited blood condition that prevents proper clotting. As a result, injuries or cuts take longer to stop bleeding, and patients may experience sudden bleeds in muscles or joints without any obvious cause.
To make matters worse, only three percent of people living with the bleeding disorder have been diagnosed properly, creating loopholes for myths, superstitions and stigma to compound the lives of people living with Haemophilia.
Caring for people with bleeding disorders is very costly and getting professional help is expensive, hence organisations like the World Foundation for Haemophilia and the Haemophilia Foundation of Nigeria have created support spaces as well as medications to assist persons with this health condition.
However, the Federal Government of Nigeria, through the office of the Coordinating Minister for Health and Social Welfare, Prof. Mohammed Ali Pate, CON, on the sidelines of the commemoration of World Haemophilia Day 2026, which held at the Conference Hall of the Federal Ministry of Health and Social Welfare, Abuja, on the 17th of April 2026 at 10 am, with the theme as, DAIGNOSIS: THE FIRST STEP TO CARE, have decided to step in, bearing in mind the challenges of seeking treatment for inherited bleeding disorders and the associated expenses attached to it for families of patients. Collaborating with World Federation Haemophilia(WFH) and Haemophilia Foundation of Nigeria(HFN), The Federal Government officially flagged off “The Road To Clot” to identify, diagnose and treat people living with blood disorders, connect them to a registry for long-term care and track the treatment outcome.
The Coordinating Minister for Health and Social Welfare, ably represented by Dr. Kamil Shoretire, Permanent Secretary Designate, and Director, Department of Health Planning, Research and Statistics, administered relief and respite when he uttered the words “People with Haemophilia, the government sees you, we hear you and from this day on, we will not let you down.”
Part of the immediate plan of the Federal Government is to integrate Haemophilia and other inherited bleeding disorders care and services into the Maternal and Child Health Services, both at Primary and Secondary levels of healthcare in Nigeria mobilize state governments to improve diagnosis, scaling up advocacy and mass mobilization at the community level, strengthen research and identification through Universal Newborn Screening, partnering with private sector and partners and create awareness that leads to better prevention of Haemophilia and other bleeding disorders.
Executive Director and Founder of Haemophilia Foundation of Nigeria, Megan Adediran, showered praises on the Federal Government for recognising the burden of managing Haemophilia and other bleeding disorders, and setting up a comprehensive plan to streamline care and services thereof. She was supported in this regard by other partners and stakeholders such as Prof. Theresa Nwagha, of the South East Haemophilia Treatment Centre, University of Nigeria Teaching Hospital, Utuku-Ozala, Enugu State.
During the question and answer session, the representative of the Coordinating Minister for Health and Social Welfare, Dr. Kamil Shoretire responded to an inquiry from Health Pharm Media correspondent concerning coverage of Haemophilia patients for emergency medical services, saying that they were captured under NEMSAS free ambulance conveyance to facilities and free medical care for the first forty-eight hours thereafter.
Group photographs were taken with the Coordinating Minister’s representative, partners and children living with inherited blood disorders, and thereafter, Dr. Kamil Shoretire officially flagged off the “The Road To Clot” Initiative at the Parking Lot of the Ministry, with three special ambulances on display for emergency services of Haemophilia patients.
Raymond Ken-Mbata, reporting for Health Pharm Media.
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